But This is my life now and I'm ok with it because I have the neatest little baby to love and somehow Chris and I are getting through it becoming closer then before. I'm ok with it because I've gotten to know God and Jesus Christ better. I'm ok with it because of all the people we have met along the way, mostly in hospitals. I'm ok with it because I have the most amazing support group and family who love Zuzu more then words could tell.
So here we are dying to know the next step and we don't have much time. Little Zuzu's breathing is rapid and labored! The surgeon that performed Zuzu's surgery (chief of cardiology at Primary's) is only 90% confident he can fix the narrowing HE CReATED :( and only 50% sure he can fix the rest of the leakage (double frown). So he's trying to get in touch with the hospital in Boston to see if a surgeon there is more confident. Boston is the number one cardiac hospital IN THE WORLD! And Zuzu's case is extremely rare so we are praying to find another surgeon with more confidence who can fix her heart ASAP!
So that's where we are waiting, watching, hoping, praying, crying, wondering.
Teaching her to swim. She is doing amazing! And her first bandaid.